When she was only 11 years old, the school bus Emilia Becker was riding in was involved in a crash and rollover. What her family first thought was a concussion turned out to be much worse. At times, her courageous comeback from brain trauma has been slow and arduous. While she will forever live with the effects of the injury, now, after years of hard work and with the help of friends, family and University of Regina faculty and staff, Becker is celebrating her graduation at the University’s spring convocation.
Emilia Becker doesn’t remember the moment of impact. One instant, she was riding in the school bus, and the next, she was being driven to the hospital. Everything looked white. Later she was told that when the bus collided with another vehicle and flipped over, she hit her head on the roof. She was originally diagnosed with a concussion, but after several weeks of no improvement, it became clear that she had suffered a moderate brain injury. She was only 11 years old.
Physically, the injury left her dizzy and in pain, making walking difficult. “I knew in my head how to walk, but my right leg didn’t listen to me very well. It would drag and my toes would turn in and curl up,” she says.
Then there were the changes in her personality. Her mother, Heather Getz, noticed it right away. “She was very literal. She behaved quite childlike; she was like a three-year-old. One of the biggest things was that she lost her sense of humour,” she says.
Getz took a year off work to get Becker to physio appointments and do whatever she could to help her daughter heal physically and mentally. Cross-country skiing and swimming assisted with mobility, and tricks such as drawing pictures and making up stories helped with memory. “I used to rub her feet, because the right side was impacted. Her right foot was always colder and didn’t have as much sensation. I would try to remind her brain that it was there. I thought if I could remind the brain that those parts are there, maybe they will work better,” Getz says.
"What I’ve learned is that you grieve the change when a child is injured, particularly with brain injury, but it’s the same with any child as they grow up. Who they are may not be what you anticipated, but you have to love them and not push them back into something you thought they would be, because who they’re turning into is remarkable.”
Particularly concerning was when the pediatric neurologist told Getz to be prepared for the possibility that Becker may never be able to live independently. “That was really shocking, because I kept thinking she was getting better. It hadn’t occurred to me that I wouldn’t get my old girl back,” Getz says. “It was hard to accept that we had to let go of the girl she had been, grieve who she was and accept who she is. What I’ve learned is that you grieve the change when a child is injured, particularly with brain injury, but it’s the same with any child as they grow up. Who they are may not be what you anticipated, but you have to love them and not push them back into something you thought they would be, because who they’re turning into is remarkable.”
Returning to school was a struggle for Becker. Before the injury, she had straight As and was involved in Girl Guides, tap, jazz, ballet, Spanish lessons and more. Afterward, she couldn’t even remember how to read or do math. “I’d read a sentence and would forget the beginning of it by the end of the sentence. I went back to reading kids’ [picture] books,” Becker says.
Getz made flash cards to help Becker learn simple math again. “She cried because she knew how to do things like multiplication but had to relearn it the second time,” Getz says.
All of that hard work paid off. By the end of Grade 8, Becker had one of the highest average in her class. “It wasn’t an option for me to not be the best I could be. I was always a really determined kid. It didn’t occur to me to just accept it. My family really believed in me and sacrificed a lot to get me back to where I was. Without their support, I wouldn’t have been able to do all the rehab that I did,” she says.
Brain injuries are permanent, however. Becker still suffers effects from her injury, including exhaustion and mental health issues such as depression and anxiety. Despite these challenges, Becker enrolled at the University of Victoria in 2013, where she studied sociology for two years.
“I’ve always been ambitious academically, and they knew that the future I wanted had to be achieved by going back to university,” she says. “They believed in me, helped me figure out my finances and really inspired me to take the plunge. I may have gone back eventually on my own, but they were a huge factor.”
When she came home to Regina for the summer in 2015, she contracted a virus that left her bedridden for months. That time off made her realize how much her mental health had been taxed during her time away at university. “Up until then, I’d been coping, but with the added stress of accommodations, living away from home, school and my mental health, I decided it would be the healthiest decision to stay home, near family and friends, and take a break from the stress of school,” she says.
She kept busy working a few different jobs, including with the federal government, Laser Quest, a gym and the Regina Bypass. She also volunteered with CC RezQs, a local dog rescue, by fostering dogs in her home, and she started painting as a hobby. She soon became dissatisfied with the entry-level positions she could find without a university degree. Her mother and boyfriend (now fiancé) started nudging her to go back to school.
“I’ve always been ambitious academically, and they knew that the future I wanted had to be achieved by going back to university,” she says. “They believed in me, helped me figure out my finances and really inspired me to take the plunge. I may have gone back eventually on my own, but they were a huge factor.”
“I may take longer to write a test, but when I put my mind to it, I can still get 90s. I believe that disabilities just change the way we do things but don’t limit us.”
She picked up her studies at the University of Regina in fall 2017. The University was a natural choice for Becker, as she wanted to be close to her family and support systems. She also appreciated the diversity of classes available. She majored in sociology and minored in psychology, filling her electives with classes such as women and gender studies, biology, Cree, and interdisciplinary studies.
The University works hard to accommodate students with disabilities. The main accommodation Becker received was extra time to write exams, as well as a private room to write them in. “The extra time lets me take rests when my brain gets tired, without sacrificing the entire exam,” she says. Becker finds that after about half an hour on a multiple choice exam, she may be unable to comprehend what she’s reading. “It feels like I hit a wall.”
She has learned that the best way to continue writing is to close her eyes and rest for at least five minutes. Then she can usually continue for another small stretch. “The extra time helps me take my time and truly show what I know, without my disability getting in the way,” she says. “I may take longer to write a test, but when I put my mind to it, I can still get 90s. I believe that disabilities just change the way we do things but don’t limit us.”
One professor who has supported Becker in her academic journey is Laura Ambrose, who teaches biology at Luther College. Ambrose has a lot of experience accommodating students with disabilities. “When I meet with students about their accommodations, I am careful to be respectful of them as people, not just thinking of them as students that require more time from me. I like to have them tell me how they see their accommodations being met, as a starting point for the discussion, working together from there to determine the best strategies for the semester,” she says. “It is important to me that students feel comfortable coming to me during the semester if there is a problem with the accommodations in the lectures or labs. I let them know that I think they are the experts for their situation, and I am more than willing to learn new ways to create an equitable learning environment.”
Ambrose has some advice for other professors who may be new to accommodating students with disabilities. “I encourage my colleagues to see accommodations as an opportunity to get to know more about students and the way they learn, rather than more tasks for the to-do list. Meeting accommodations sometimes requires creativity and allows development of interesting strategies for teaching and assessing that will benefit all students. Classes with high enrolments are not great for getting to know students or hear their narratives, so meeting with students about accommodation is a great connection.”
Becker was in the Luther College library when she received an email telling her she had won the David Ryson Accessibility and Inclusion Award. She was so happy, she immediately started crying. After she had calmed herself down, a second email came in to inform her that she was the recipient of the Dr. Douglas and Patricia Vandenberghe Scholarship. “I burst into tears again. Then I went home. I didn’t get any homework done that day.”
Both the award and the scholarship are for U of R students with disabilities. “I want people to know how helpful that was for me and hopefully get more scholarships for people with disabilities. Paying for school is hard enough, but if you have a disability, it’s even harder,” she says. “A scholarship that is specific to people with disabilities gives them a better fighting chance to overcome their situation and achieve their greatest potential.”
With the award and scholarship, Becker only had to find $400 to pay her tuition that semester. She was able to do that by selling some of the paintings she had created. “I was able to say, ‘I paid for a whole semester of school with just my grades and my art.’ I didn’t have to dig more into my savings and my parents’ savings because of that.”
Becker is a self-taught artist. She has always been artistic but was inspired to start painting seriously in 2017, when she went to a Luther University Student Association Paint Nite fundraiser to support Astonished!, a non-profit on-campus organization that addresses the barriers young adults with complex physical disabilities face.
“I ended up going on my own and painting something, and it was really cool,” she says. What started as a hobby became a small business, with a realtor commissioning her to paint pictures of houses for clients, and others hiring her to do portraits of their pets. She is busy enough selling her art that she hasn’t had to work a typical part-time job for the past year.
The art has helped in her recovery as well, by engaging her fine motor skills and giving her another way to communicate. “Art is good at explaining what you’re going through. You can express yourself and occupy your mind and play and discover things. It’s separate from your disability, mental health issues, school stressors and life in general. You can escape everything for a while, and there’s no expectations, there’s no good or bad,” she says. “I think art is something everyone can do. It’s fun to get messy; we don’t get to do that very much once we grow up.”
Becker likes to focus on optimism and positivity in her art. “I think a lot of art comes from understanding struggles and hardship, but I want to focus on how to grow from it and what comes out of that.”
One of her favourite things is being commissioned to do a painting because she gets to work closely with people to figure out their interests and what they want in their home. “You have to really understand them and what they’re passionate about. I don’t have a specific style that I can apply to everything. I find out their reason why they want it painted and make a whole new creative process,” she says.
Becker has also been a spokesperson for the Saskatchewan Brain Injury Association. They made a video about her story, featured her on a poster with the theme, “You can’t see a brain injury,” and sent her on a summer speaking tour of service clubs. Glenda James, executive director of the Saskatchewan Brain Injury Association, notes that a speech Emilia gave at a fundraising gala was even more popular that the one given by the keynote speaker that year. “She can articulate her story very well,” says James. “One of the things I remember most is she said she wished she had a cast on her head, because the hardest thing about being a brain injury survivor is the invisibility. You can’t see a brain injury, but that doesn’t mean you’re not affected.”
“The only thing she needs from the rest of us is some understanding and a bit of accommodation. If we can give them supports and focus on their strengths, people can succeed as Emilia is doing,” she says.
James believes society should look at people with disabilities from a “strength-based approach.” This involves understanding what they’re going through and accepting them for who they are, so their strengths can be supported. “Let’s not discount people because of how they appear to us. Let’s dig a little deeper before making judgements. Let’s focus on strengths. Emilia is brilliant, artistic and creative. She is a very capable person, and she has all the things she needs to succeed. The only thing she needs from the rest of us is some understanding and a bit of accommodation. If we can give them supports and focus on their strengths, people can succeed as Emilia is doing,” she says.
Photos by Trevor Hopkin, University of Regina Photography Department.